UC Davis Health's New Role: A Beacon for Rare Disease Excellence
A Boost of Recognition: NORD’s Prestigious Designation
In a move that positions UC Davis Health at the forefront of rare disease care and research, the institution has been honored as a NORD Rare Disease Center of Excellence. This prestigious title underscores UC Davis Health’s remarkable leadership in offering cutting-edge, multidisciplinary treatments to over 30 million Americans grappling with rare diseases.
Bruce Hall, the interim vice chancellor of human health sciences, expressed immense pride in aligning with top academic and medical entities to transform rare disease research and patient care. The significance of joining such a distinguished network cannot be overstated. According to University of California - Davis Health, this recognition is testament to the university’s prowess and commitment to rare disease advancements.
Embracing Comprehensive Care
UC Davis Health’s commitment to innovation is evident in its comprehensive treatment model, ranging from initial diagnosis to revolutionary treatment approaches. The Precision Genomic Program stands as a lighthouse for families seeking clarity and hope through whole genome sequencing and bespoke treatment strategies.
“Our objective is clear—no patient should be left unaided,” articulated Suma Shankar, head of the Genomic Medicine Division. Her vision extends beyond treatment, fostering ongoing relationships with patients and their families, ensuring they’re equipped with the latest therapies and resources.
Pioneers in Gene Therapy and Clinical Trials
At the helm of groundbreaking gene therapy research, UC Davis is a pioneer. Their involvement in the development and testing of gene and stem cell therapies, particularly for conditions like Angelman syndrome and ADNP syndrome, showcases their expertise and commitment to medical innovation.
Housing nationally acclaimed programs, UC Davis Health also runs essential clinical trials. These include assessments for rare autoimmune diseases and specific neuromuscular disorders, facilitated by their specialized genomics clinics like the Autism Genomics Clinic.
Building a Chain of Excellence: The NORD Network
UC Davis Health joins an elite cohort of 46 institutions within the NORD Rare Disease Centers of Excellence Network. Spanning 28 states, these centers collaborate to streamline diagnostic processes, enhance care access, and propel research forward. This alliance aims to bridge the gaps in clinical expertise, reaffirming the motto that geography should not determine healthcare access for those with rare diseases.
Pamela K. Gavin, NORD’s CEO, expressed pride in UC Davis’s inclusion. “Together, we are guaranteeing that individuals with rare diseases receive timely and expert care, no matter their condition or location,” she stated.
Stories of Triumph and Collaboration
UC Davis stories are a testament to their mission. From lifesaving care for children with rare conditions to pioneering stem cell therapies, every narrative reinforces UC Davis’s unwavering commitment to rare disease breakthroughs.
Join us in celebrating UC Davis Health’s monumental achievement, a beacon of hope and a testament to the power of collaboration in transforming the landscape of rare disease care and research.
